Ok…so maybe my current predicament hasn’t quite achieved disaster status…yet. But I keep getting pretty darn close! As many of you regular readers may know, I have quite a history of really random health issues. It’s never anything serious, but I’m that kid on the playground who has a new, unexplained rash every week. That’s right; I’m going to talk about my rashes again. Only this time, I might actually have a convoluted explanation!
^^^ Believe it or not, I got teased A LOT in grade school…
Again, let’s turn the clock back to the summer of 2005 (quite a few years back). I was 17 working as a nursery-keeper in my church every Sunday morning and Wednesday evening. I was always sick with some kind of cold or sinus infection. Because of this, I now have quite the immune system! But at the time, I was feeling really sick…again. So I went to see my ear, nose, and throat specialist, Dr. ENT, I will call him. He’s a little Vietnamese man, about my size, who speaks with an extremely thick accent. Upon my examination, a large lump was found in my neck. Yay. The cyst on my thyroid had been discovered. We don’t really know how long it had been there (we assumed a couple months…cause it was pretty big). So the big question here was: Is it cancer?
^^^ Dr. ENT always wore that giant circular thing on his head. It amused me when I was a little girl.
For the next year or so, they ran all kinds of tests on me, took biopsies, and basically “kept and eye” on the cyst, hoping it would eventually go away, proving that it was benign. Well, it never went away. Over winter break of my freshman year in college (December 2006), I had surgery to remove the right half of my thyroid; there was no need to take out the whole thing. It’s always a good plan to leave as much of your organs intact as possible, right?
So they extracted half of my thyroid and I got to spend a whole night at UVA medical center (totally underrated). I ate chocolate ice cream, saw the first ten minutes of the TNT world premier of “Return of the King” before I passed out. Yes, I was a little peeved when they fed me pain meds RIGHT before the movie came on. My mom stayed with me ALL NIGHT LONG and woke up with me every single time the nurses came in to check my vitals. How awesome is that? And then when I couldn’t go back to sleep, we stayed up and talked for hours. ::sigh:: Pretty much the coolest lady in the world.
^^^ A fun place to be!
But back on track! They found that the cyst was benign! YAY! Nothing to worry about anymore, right? I started taking synthetic thyroid hormones so the other half of my thyroid would “go to sleep.” Theoretically, one half of a thyroid will produce enough hormones for your whole body, should the other half be compromised. However, the doctors were unsure of what caused the random cyst on the right side so putting the other half to sleep as a precaution was the best idea. No more mystery cysts!
Well, the saga continues. Exactly six months after my surgery, as soon as the weather turned warm, a huge, puffy, itchy rash formed over and around my surgical scar all over my neck. This rash thing came and went all summer, finally disappearing into the night at the start of my sophomore year. I saw several doctors about this issue, mostly physicians and one dermatologist. No one could explain it except to say, “It looks like an allergic reaction to something.” Gee wiz. That helps.
^^^ Not even Wikipedia could tell me the answer!
Another year or so goes by. No rash. It’s forgotten, right? If some of you recall, I had ANOTHER unexplained rash all over my right thigh at the beginning of my junior year (this past fall semester, 2008). Again, went to a doctor, “Ah! You’re allergic to something. Here’s a steroid cream.” Of course under the influence of steroids, almost anything can be cleared up. So that one went away.
^^^ Haha! I couldn’t help it.
That’s the history. Let’s put the clock back to present day. It is now the summer of 2009, months after my leg rash and a couple years after my last neck rash. I went to the Outer Banks last weekend with my cousin who is one of my nearest and dearest friends. I will call her “The Cuz.” There was absolutely no shade to be had on the Oregon Inlet campground. I got a nice sunburn in a few places but other than that, the weekend was quite enjoyable. Upon my return on Sunday evening, I couldn’t help but notice that my arms were itching terribly around my elbow joints. I wasn’t burned there, but I had gotten a lot of sun there. Was this sun poisoning? Hm.
^^^ I finally got my beach fix!
Long story short, this began happening to my neck. By Tuesday, both of my arms and chest area were covered in tiny little red dots. And I was itching like I had never itched before. I threw my hands up, “Ok. Time to call an allergist.” Within one doctors visit, I received an explanation for ALL of these medical issues I have just listed. Here it is:
MY IMMUNE SYSTEM HAS BEEN ATTACKING MY THYROID FOR AT LEAST 5 YEARS! I HAVE THYROID DISEASE!
Now, if you know your doctors well enough, you would know that most allergists are also immunologists (hallelujah!). So Dr. Godfather (I’m going to call him that because he spoke with a New Yorker’s accent, saying things like, “No big deal,” with an emphasis on the ‘d’) just about leapt out of his little wheely chair when I mentioned I had a history of thyroid issues. “I am almost certain this is related to your thyroid,” he said.
^^^ “I’m going to fix you!!!!!!!!!”
Here is what’s happening inside the writer’s body: One day, for some reason unknown, my overactive immune system said, “Hey! I don’t like that thyroid thing!” So it built up all these specialized antibodies specifically to kill my thyroid. There are many things that can happen as a result of this. One result is a growth forming on the thyroid. That was my thyroid’s first response. Bada-bing, bada-boom, we have a cyst! Doctors say, “Wow…your hormone levels are completely normal! No disease! You just grew a cyst randomly (which does happen) so let’s take it out!” Cyst is gone…but half of my thyroid remains. So the antibodies keep rolling in, shooting at my injured thyroid. (I imagine this to look something like a battle scene in the new Star Trek movie). Instead of growing another cyst, this time, my thyroid produced histamines and HIVES! In my case, heat is the main trigger for this event, hence, the reason it has only popped up during hotter conditions.
^^^ I now have a running joke with my close friends and family that my skin is that of a vampire’s and will start to sizzle if I step into the sun.
So to date, my arms, neck, cheeks, and ears are covered in hives. I am taking a series of antihistamines including Claratin, Zyrtec, and Zantac 150. Apparently, Zantac, which is used to inhibit stomach acid production, also inhibits the production of histamines. This morning I woke up looking like a pug dog with really swollen, pouty lips and beet-red cheeks. I am really banking on this stuff kicking in SOON! Although the doctor was very confident in his hypothesis, he sent me to the lab for some blood work as a precautionary measure. They will test my blood for the antibodies that work to kill my thyroid. There is no cure for my condition (except another surgery to remove the remaining half of my thyroid), so the idea is to wait it out. If my thyroid isn’t already mostly dead, it will be soon.
The most amusing thing about this whole scenario is that I actually have a disease. I think it’s great! It’s a minor disease so it’s not going to kill me or anything. The technical term is Hashimoto’s disease. Here’s a little blurb I found online at http://www.mayoclinic.com/health/hashimotos-disease/DS00567 –>
“Hashimoto’s disease is a disorder that affects your thyroid, a small gland located at the base of your neck, below your Adam’s apple. The thyroid gland is part of your endocrine system, which produces hormones that coordinate many of your body’s activities.
In Hashimoto’s disease, also known as chronic lymphocytic thyroiditis, your immune system attacks your thyroid gland. The resulting inflammation often leads to an underactive thyroid gland (hypothyroidism). Hashimoto’s disease is the most common cause of hypothyroidism in the United States.
Doctors test your thyroid function to help detect Hashimoto’s disease. Treatment of Hashimoto’s disease with thyroid hormone replacement usually is simple and effective.”
^^^ Here’s a little animated mechanism of what happens with Hashimoto’s thyroiditis…for all you visual learners out there.
It’s simple and effective…as long as you don’t produce hives : ). The only disconcerting thing about this whole disease is that “infertility” and “birth defects” were listed as possible complications. I think as long as my hormone levels are stable (which is achieved with a nice little synthetic thyroid hormone pill taken daily), I should have no problem. I love kids!
^^^ I typed “lots of babies” into Google Image and found this. And then I laughed out loud…alone on the couch.
As an aside, I was tested for many common allergies and I am allergic to NOTHING. Yay! I can still eat peanuts! But for now, I am incapacitated and itchy. I haven’s showered recently (I wouldn’t dare admit how long) because it makes me itch. And taking a cold bath would be miserable. The doctor said I should apply Vicks Vaporub to my hives to relieve the itching. He’s right! It really works! But I am incredibly greasy and have to cover the couch with a sheet just so I can sit on it. So for now it’s just me, GRE workbooks, pajamas, and facebook. I should add chocolate milk to that list… 🙂 Until next time!
^^^ “Ohhh yeeaahh…”
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